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donna jones, manchester, lancs
Sent: 2007-10-21 at 07:58:35 GMT
my daughter has aortic valve stenosis.She was 9 weeks old when she had a balloon valvuloplasty and has done well. She is now 10 and unfortunately her valve is moderately stenosed and is also leaking badly so she is on the waiting list for the ross procedure. She does tire easily and i am so scared of this surgery. She is so precious and its such a big thing for a little girl to go through. If there are any parents who are going through similar I welcome your expertise/advice. Thanks for listening.