Guestbook
If you would like to make a comment about any matter related to the Association, your own experiences with a heart child or comments about our website, you may do so in this Guestbook. Note: Latest entry is now at the bottom of the last page.Page: < 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16
17 18 19 20 21 22 23 24 25 26 27 28 29 >
lee collins, trelewis, merthyr tydfil south wales
Sent: 2003-08-25 at 19:53:44 GMT
our son nyle was born with pulmonary vein stenosis he is three years old and has had three open heart surgeries performed at bristol childrens hospital.we have heard of cases of pulmonary stenosis,but not pulmonary vein stenosis.We would love to here from anybody with the same condition.
Click here to contact 'lee collins'.
UMYAN, Enfield, England
Sent: 2003-08-30 at 22:27:12 GMT
My Son was born 6weeks early on 27.07.2002, with TOF. Have had full Heart Repeir at GOSH on 18.02.2003. At 6and a half months old. We are doing well! Anyone who needs advice or a shoulder to cry on I'm here!
Click here to contact 'UMYAN'.
nicola, eastkilbride
Sent: 2003-09-03 at 13:24:09 GMT
My son jack was born 3 weeks ago and at just 3 days old the doctors realised that he had coarctation of the aorta, jack was transfered to yorkhill sick kids hosp where he was operated on at 5 days old i would love to chat to other parents who have been in the same or similar situation.
Click here to contact 'nicola'.
Louise, oldham, Lancs
Sent: 2003-09-09 at 12:03:10 GMT
Amanda Mayson. Please could you email me our son also has sub aortic stenosis. he had open heart surgery May 2002 but it is back. We are at present talking to a surgeon in Miami we think he might need a Konno or even a Konno/ross. I would love to talk to you my addy is < ... >
Click here to contact 'Louise'.
Vikkie
Sent: 2003-10-07 at 14:51:41 GMT
I would like to thank the people who run this site for Sarah's story in the features section. Thanks to this i was able to complete my coursework due to it was a real life example
Sorry, 'Vikkie' did not leave an email address.
Keith, Montgomery Illinois, United States
Sent: 2003-10-24 at 17:12:42 GMT
I have a son who was born on Feb. 20 2003 he was diagnosed with primary pulmonary stenosis on March 18 2003 had open heart surgery on March 29 and passed away at home on May 12th. My wife wants more children, is or does anyone know of the possibility of reoccurance..Please let me know if anyone has any < ... >
Click here to contact 'Keith'.
julie, west midlands, england
Sent: 2003-11-04 at 13:21:49 GMT
I had a daugter with Anomalous Left Coronary Artery arsing from Pulmonary Artery, (ALCAPA) does anyone know anything about this defect, why it occurs and why it is often too late to save a child with this defect. thank you
Click here to contact 'julie'.
iona bell, invergordon, scotland
Sent: 2003-11-10 at 11:09:50 GMT
my son was born with a condition called e.f.e we didnt discover it until he was 3 months old when we nearly lost him, he had a cath stretch done on his aoertic valve at the time and last year he had his mitral valve replaced, he still has aortic stenosis and the valve is leaking, we go to yorkhill sick kids on a regular basis and it would be nice to speak to other people in a similar situation thak you.
Click here to contact 'iona bell'.
17 18 19 20 21 22 23 24 25 26 27 28 29 >
Where the poster has left an email address, a 'Contact' link will appear.
Please use this if you wish to get in touch with the poster.
