Guestbook
If you would like to make a comment about any matter related to the Association, your own experiences with a heart child or comments about our website, you may do so in this Guestbook. Note: Latest entry is now at the bottom of the last page.Page: < 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16
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Sue Warwick, Bolton, England
Sent: 2002-08-16 at 20:40:12 GMT
My son was born with fallots+complications. He had two operations to open narrowed arteries then corrective surgery could take place. To cut a long story short, at six years old we were told there was nothing else to be done. The reason I put this entry into the book is to give other parents hope. Russel is now nearly 18 years old 6ft 3 very active and very much alive. He has had five heart opperations and needs maybe one more to take him into adulthood. Never give up hope, always remember another day is another day that someone will find a solution to your or your childs heart condition. Sue.
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Sue Warwick, Bolton, England
Sent: 2002-08-16 at 21:01:01 GMT
I have already submited a message, then I read Sarah's message, I just wanted to say that Russel's first two opperations were performed by Miss McKay and she showed dedication to Russel as she did to Sarah. Russel's other major opperations were done at Birmingham by Mr Braun who showed equal dedication to his patiants. I also have to say Pendlebury Childrens Hospital have looked after Russel from 14 weeks old under the care of Dr Patel and team for 17 years with
care and dedication, I feel quite in adiquate by just saying thank you. Sue
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Angie Ross, Forfar
Sent: 2002-08-17 at 08:51:19 GMT
Our daughter, Megan, was found to have a large ASD when she was three,in November last year when she was admitted to hospital for something else. This was a big shock as you always assume if your child is okay as a baby and has all their checks, they will be alright. She had open heart surgery in Yorkhill at the end of January this year(seven weeks before her sister was due!}, and has gone from strength to strength since, and hopefully she will get the all clear at her check up due in September. I still find it hard to believe what has happened and cannot seem to ever stop thinking about it - does anybody else feel like this?
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Christa Wilson, Cambridge, England
Sent: 2002-08-29 at 10:10:07 GMT
We have just learnt from our 5 month scan that our unborn child is suffering from Pulmonary Atresia, Ventrical Septal Defect and small ventrical. We were also advised by Great Ormand St to have an amnio to see if there were other chromosome disorders. We are now waiting to see if the chamber grows so we can see what the next step is. We would love to hear from anybody who has been through anything similar or who can give us any advice.
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maria chebrika, manchester, England
Sent: 2002-09-01 at 13:39:35 GMT
My son connor,was born with a Hyperplastic left ventricle,atrial septal defect,he has had 3 lots of corrective surgery,and has to have the fontan opperation next year,he's due to go into alderhey hospital next week for a catheter.he has also had a lot of feeding problems and has a gastrostomy tube in his stomach,his feeding has got alot better,so his tube can come out soon,unfortanatley the upset of taking him down to theatre never gets any better,as alot of parents will agree,connor is 3 now and has been through so much in his life.besides all the opps,hes had a lot of illnesses and is sometimes in and out of hospital with sometimes just a cold and a high tempriture.I would like to hear from people and families with children with similar heart conditions,Best wishes maria.
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prasant, orissa, india
Sent: 2002-09-01 at 19:29:29 GMT
It was an excellent information site.
Please keep one icon to link your site from our homepage.
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Kimberly Coleman, Myrtle Beach,SC, United State
Sent: 2002-09-05 at 15:47:20 GMT
My daughter died at the age of 15 with myocarditis and we had no idea that she had the disease. She was in band camp for a week and when she returned home she was hurting in her shoulder when we took her to the doctor they said it was a pulled muscle. The next day she was having trouble breating and hurting in her shoulder and arm...Took her to the hospital and they WROTE IT OFF...She died 5 days later...They rushed her by hedicopter and lossed her. She was my angel and I miss her very much......
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Debbie Ware (Ellis), Bedford, England
Sent: 2002-09-05 at 19:45:30 GMT
HI All,
My Son was born with TGA & VSD back in 1995, he had a ballon Sept done at 3 weeks of age, followed by a Switch, vsd & Asd repair done at 5 weeks of age. the Op was performed by Marc de Leval at Great Ormond Street Hospital. Charlie is 7.5 Years now heart wise he has a leaky aortic valve, but he is having learning Difficulties, know tracking problems have been found. He his a very happy, loving, sweet and handsome little boy.
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