GuestbookIf you would like to make a comment about any matter related to the Association, your own experiences with a heart child or comments about our website, you may do so in this Guestbook. Note: Latest entry is now at the bottom of the last page.
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Natalie & Gareth, Cheltenham, England
Sent: 2007-01-18 at 21:49:14 GMT
We have a 5 month old little girl called Grace. She was diagnosed with tetralogy of fallots at 2 weeks old. She had a shunt op in october and we are awaiting a date for a full repair. It was heart breaking seeing her go through this and so wish we could do it for her. She is so happy all of the time and we are so so proud of her, she is beautiful.
If anyone is in a similar situation and would like to exchange emails or meet up if in similar area please email me, could do with chatting with someone who knows just what im feeling.
Click here to contact 'Natalie & Gareth'.
emma, driffield, england
Sent: 2007-01-20 at 21:23:28 GMT
my daughter is due 4 surgery on wednesday she has tricuspid atresia please pray 4 her any 1 who wants 2 chat
Click here to contact 'emma'.
Sent: 2007-01-22 at 01:09:02 GMT
Homepage : http://lopa.net
God bless any child in this world and beyond
Click here to contact 'Lopka Xmass'.
anand raut, Delhi, India
Sent: 2007-01-24 at 10:18:34 GMT
my daughter is six year old. At the age of 2 it was diagonosed dextro cardia situs inverses in a routine check up by our family physician. we went for so many test for our satisfaction and found every thing normal with dextro cardia situs inversus. she is as normal as any other children. thank god.
Click here to contact 'anand raut'.
Joseph Ludwick, San Diego, United States
Sent: 2007-02-05 at 17:42:35 GMT
My wife and I have a beautiful 2 month old daughter who was born with tricuspid atresia with a VSD. She's a vert strong girl,and we have been very lucky because she has not needed surgery yet. If her oxygen suturation stay's at her current 95 percent, then she will have the second stage surgery at 3 to 4 month's. My wife and I are interested in talking to parent's who have children with this same heart problem. We are also interested in talking to people who have gone through the Fontan and Glenn procedure's. Please pray for are daughter, Leanna Lorraine. Thank You.
Click here to contact 'Joseph Ludwick'.
Andrew Kerridge, wisbech, cambs
Sent: 2007-03-10 at 21:07:38 GMT
Homepage : www.freewebs.com/rooney123
hi all I think this site is verry helpfull as I have a heart child called Rooney named after wayne the footballer he has a Coartion of the aorta. so fill free to visit his site it has lots off helpfull links.
Click here to contact 'Andrew Kerridge'.
Deborah Bragg, Wakefield, England
Sent: 2007-03-14 at 13:13:00 GMT
My daughter Millie was diagnosed with Fallots the day after she was born - in her short life (she is nearly 18 months) she has had a bowel operation to unblock her bowel (1 week old) a BT Shunt, a subglotic stenosis repair (very narrow windpipe)all of which have gone well and she is doing well - she is only small just over 8 kilos and is now waiting for her open heart surgery to repair her heart (close the hole, unblock the pulmonary artery etc). We saw the surgeon yesterday who had to tell us everything that could go wrong - because they have to ! I have known since the day after she was born that she needs the operation but at the moment I am feeling really low - the same as I did the day after she was born - is there anyone with any advice about how to cope until the big day arrives - I need to be positive but am feeling really unpositive at the moment.
Click here to contact 'Deborah Bragg'.
Karen, St Albans, UK
Sent: 2007-03-15 at 13:41:04 GMT
My 5 year old son has just been diagnosed with pulmonary stenosis - we are now waiting for an urgent appointment at the heart murmur clinic, but dont really know what pulmonary stenosis is or what his outlook is. We would appreciate hearing from anyone who could help with information
Click here to contact 'Karen'.
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