GuestbookIf you would like to make a comment about any matter related to the Association, your own experiences with a heart child or comments about our website, you may do so in this Guestbook. Note: Latest entry is now at the bottom of the last page.
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Nicola Jervis, Manchester, England
Sent: 2006-11-13 at 19:47:08 GMT
My daughter Thea is 5 months old, when she was 10 days old we found out that she had multipul VSD'S an ASD and patent duct arterious. She had her first operation in August, she had a PDA closure and a PA banding. She will need more operations in the future. She is fed by a Naso-gastric tube and is due to have an operation for a gastrostomy tube. if any one has had similar issues or has a child with a gastrostomy tube it would be nice to here from you.
Click here to contact 'Nicola Jervis'.
Lyndsey, Liverpool, UK
Sent: 2006-11-19 at 11:00:10 GMT
Homepage : Alder hey
Just wanted to say a huge big thank you to Val & everyone else involved in the ball Nov 11th 2006. We all had a fantastic night & cant wait for the next one. Cheers xxx
Click here to contact 'Lyndsey'.
Sent: 2006-11-20 at 14:07:18 GMT
Just to say a big thank you to Val and everybody else that was involved with arranging the Ball of Hearts on 11th November. We had a great evening and it was lovely to see the staff from K2 again! Louise
Click here to contact 'Louise Elliott'.
val frew - Chairman liverpol branch, liverpool
Sent: 2006-11-21 at 12:31:27 GMT
Hello, i would just like to say thank you very much to everyone who attended our " Ball of Hearts " 2006 at the crown plaza in liverpool on 11th nov 2006. The event was very succesful and we had nearly 300 people attend. I have seen some pictures and they show us all having a good time which is very important. The feedback i have recieved is great and i know you are all waiting for the details of the 2007 Ball of Hearts, which i will have mid to end jan 07. I would like to thank everyone who donated items for our Auction and Raffle we really appreciate your support. I would like to thank all the people who got their family, friends, and work collegues to come along and support us, without you we would not have had such a succesful event and it was lovely to meet so many people. Thanks also to everyone who helped on the day and evening. we managed to raise a fantastic £5004 from the event and this now gives us enough to buy the Mri recovery monitor for Alder Hey which was what we were raising funds for this year. I Look forward to organising next years. If you have any photo,s you can e-mail to us that would be great we look forward to receiving them and look forward to seeing you all again in 2007.
chairwoman liverpool branch
Sorry, 'val frew - Chairman liverpol branch' did not leave an email address.
Michelle Johnston, Liverpool, Merseyside
Sent: 2006-11-21 at 19:58:27 GMT
Just like to say what a success The Ball of Hearts was on 11th November and how much my company and I enjoyed it. Roll on next years:-)
Click here to contact 'Michelle Johnston'.
Sent: 2006-12-01 at 20:20:46 GMT
Just a quick mesage to say thanks to Val and all who helped with the Ball of Hearts we had a fasntastic night and really looking forward to next year. Again lovely to see all the girls from K2 able to get out and enjoy themselves.
Click here to contact 'Isabel'.
karen walsh, altrincham, england
Sent: 2007-01-07 at 16:30:35 GMT
I HAVE A 5 MONTH OLD DAUGHTER WITH TRICUSPID ATRESIA WITH ASD AND ALSO A VSD. SHE HAD A BT SHUNT AT 7 WEEKS. SHE IS MY 4TH CHILD AND IS WELL LOVED BY EVERYONE. SHE IS AWAITING HER NEXT OPERATION. ANY ONE WITH SAME/SIMILAR CONDITION. WHO WANTS TO CHAT ,SHARE THEIR WOEs
Click here to contact 'karen walsh'.
Sheron, Baker, United States
Sent: 2007-01-16 at 03:49:39 GMT
My son Seth who is 10 years old now was born with an aeortic stenosis. We didn't know until he went for a checkup that something was wrong, at first they thought it was just a heart murmur,but it was something much worse. He had open heart surgery at 3mths at the Egleston Childrens Hospital in Atlanta Georgia.They put a fleshpatch on his aeorta and they said it should grow as he grew. He has done really well.Then in Dec.2006 he went to routine visit to his heart doctor and they did a sonogram very extensive and his doctor said he needed to send it to Egleston Childrens Hospital, They called us last Tuesday and they want us there on the 18th of Jan to do a heart cath on both sides of his heart and then we don't know what will happen after that. He is a very smart little boy and has asked lots of questions and I try to tell him as much as I can but it is really hard when it is your child,but God has brought us through and he will continue wherever he may take us.
Click here to contact 'Sheron'.
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