GuestbookIf you would like to make a comment about any matter related to the Association, your own experiences with a heart child or comments about our website, you may do so in this Guestbook. Note: Latest entry is now at the bottom of the last page.
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lins, louth, lincolnshire
Sent: 2006-07-31 at 22:32:34 GMT
my daughter was diagnosed with fallots when she was 6wks she is on infatrini cause being six months shes quit small she is due for open heart surgery soon i never realised how common it is and how many cases there is. would really like to no things what to exspect after operation and in hosital.
Click here to contact 'lins'.
Sent: 2006-08-08 at 10:40:58 GMT
i have a 14yr old son who is a rubella baby. he is multi-handicap;low vision, mentally challenged & deaf-mute. he has vsd & pda (small holes inside & outside the heart and needs an open heart surgery. we are not financially capable to shoulder the expenses that is why i would like to ask assistance from some charitable organizations to help us....thank you and god bless...
Click here to contact 'teresa'.
Shelley Zie, Shaldon, Devon
Sent: 2006-08-11 at 13:04:04 GMT
Our little boy has just been diagnosed with Tetralogy of Fallot. At 17 weeks old, he weighs only 10lbs and so is on SMA High Energy to build him up. He will be having a total repair sometime around December. He is also being tested for chromosome 22q11 deletion.
Click here to contact 'Shelley Zie'.
Christina Plisiewicz, Bridgeport, PA, USA
Sent: 2006-08-21 at 17:11:01 GMT
I have a four year old son who will be having his first open-heart surgery on September 8th. He has Sub Aortic Stenosis. Anybody out there who's child has the same condition and has gone through surgery. Just would like to chat with an individual who has gone through this.
Click here to contact 'Christina Plisiewicz'.
kay fraser, portree, isle of skye
Sent: 2006-08-31 at 19:35:41 GMT
hello, i have a little girl charlotte who has pulmonary atrisia and a VSD, she went through her first op, getting a shunt at four days old, then had another on the other side done at one and a half she has also had a few catheter tests done. charlotte is such a happy little girl and even when she gets tired and her skin changes colour(which was frightning at first)she still keeps going, she is awaiting her last stage of surgery due at the end of the year, she is now three and seven months and is just like any other child happy and full of mischeif!
Click here to contact 'kay fraser'.
Sent: 2006-09-14 at 17:34:43 GMT
Hi my son is 6 months old. He was born with Pulmonary Atresia with a vsd and disconnected left pulmonary artery. He had a central shunt and reconstruction of left pa at 2 weeks and is awaiting his next op. He is doing very well and we are so proud of him. I would like to get in contact with other parents so would love to hear from any of you. Take care, kelly
Click here to contact 'kelly'.
cristina, laguna, philippines
Sent: 2006-10-23 at 13:57:30 GMT
my 1yr & 3mos old baby was dignosed with TOF after he had an operation of TLC(transverse loop colostomy) because he was born with an imperforate anus. The doctors said he really need a total correction of his heart but as of his cardiac catheterization result, they said that they cannot correct my baby"s heart bcoz his pulmonary valve doesn't developed and theres nothing else we can do but to only support him.. i cant really accept what they said.. I believe that there's still hoped for my baby... Anyone there who can help to find another solution to my biggest problem, pls help me for son's life.....thanks...
Click here to contact 'cristina'.
Sent: 2006-11-01 at 22:03:37 GMT
my friends little brother has a heart condtion and you guys helped her family thourgh her tough time being away from all her friends helping him with every thing
Sorry, 'michaela' did not leave an email address.
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