GuestbookIf you would like to make a comment about any matter related to the Association, your own experiences with a heart child or comments about our website, you may do so in this Guestbook. Note: Latest entry is now at the bottom of the last page.
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Neil & Kim Mott, Teddington, England
Sent: 2001-08-09 at 13:04 GMT
We have just learned that Rosie, our 10 week old daughter has congenital heart condition (incl. a VSD)and requires major surgery. I am interested to speak with families that have been through this.
Many thanks, Neil & Kim Mott
Click here to contact 'Neil & Kim Mott'.
Sent: 2001-08-12 at 15:50 GMT
After recieving your e-mail thought I would drop in and have a look. very good. The Fitmap.com
Click here to contact 'Sheila'.
SUE DOWLING, surrey, ENGLAND
Sent: 2001-08-20 at 22:59 GMT
Our 8 month old son has dextra cardia and also has 3 holes in his heart aswell as other abnormalities, we would like to hear from any other parents in similar circumstances.
Click here to contact 'SUE DOWLING'.
Nikki Jo, Colorado
Sent: 2001-10-02 at 06:25 GMT
Hi My name is Nikki Jo and although I dont have any kids I am living with a CHD known as TOF. I was born in 1977.
Click here to contact 'Nikki Jo'.
David Barrett, Co.Mayo., Ireland
Sent: 2001-10-18 at 20:38 GMT
David you were so special, why did God have to take you away. We'd give anything today if we could have our 4 sons together today with us. Hope you and mark are looking after each other, and keep him safe, he has just arrived in Heaven. Some day we will meet again.
Daddy, Mammy, Joseph and Paul.
Click here to contact 'David Barrett'.
Dan English, Basildon, Essex, UK
Sent: 2001-11-16 at 10:57 GMT
Homepage : http://bethy.topcities.com/
I'm Dan, and my daughter Bethany has various defects with her heart (Double Outlet Right Ventricle, Hypoplastic Right Heart Syndrome, Transposition of the Great Arteries, Pulmonary Stenosis, Unbalance Atrial-Ventricular Septum Defect, Right Atrial Isomerism, Moderate AV Valve leak) as well as other 'abnormalities' (Situs Invertus (Stomach on the Right), Aspleenic (No Spleen), Neuroblastoma (Form of Cancer, Removed), Minor Brain Damage from Clotting/Strokes, Minor Fitting Episopes from Clotting/Strokes). The heart and gut problems are often categorised as "Ivemark Syndrome" "Hetrotaxy" "Asplenia" "Dextrocardia" or "Isomerism".
Bethany is 10 months old today, and is due for her Bi-Lateral, Bi-Directional Glenn-Shunt on 29th November.
I am happy to talk with anyone that feels they need help and support - we found out about her problems when she was 23 weeks in utero, and I have lots of contacts!
I also moderate a UK-Based Email list at YahooGroups. Currently there are 60-plus members, providing support, information and advice. Feel free to mail me for more information! My address is < ... >
All the best, and thanks for reading!
Click here to contact 'Dan English'.
Jill Butterworth, Rochdale, UK
Sent: 2001-12-05 at 21:17 GMT
Our daughter (4 and a half months old) has congenitally corrected transposition with vsd, pulmonary atresia and dextrocardia. She's had a bt right sided shunt and is due to have a left sided one soon, then corrective surgery when she's older. Sometimes feel so isolated! I'm positive we're not the only ones to have a child with this condition but sometimes feels like it. Would be interested in having some contact with anyone who's child has same/similar condition... i feel like it's so difficult when it's your first child - we don't know what's normal or what's because of her condition.
Looking forward to hearing from you, jill
Click here to contact 'Jill Butterworth'.
Polo Willgoss, Liverpool, UK
Sent: 2002-01-01 at 21:56 GMT
I'm Paul, also known as Polo - I'm an adult with ToF with a few extra bits and Bobs. Just to let people know there is a Europe wide listerve for those who have congenital heart defects to join either contact me at < ... > or just go to
Click here to contact 'Polo Willgoss'.
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