GuestbookIf you would like to make a comment about any matter related to the Association, your own experiences with a heart child or comments about our website, you may do so in this Guestbook. Note: Latest entry is now at the bottom of the last page.
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Danielle, Warrington, England
Sent: 2005-06-09 at 21:20:03 GMT
Hi Jacky, thought i'd post as I live in Warrington as well. My son is 7 & had ohs for Fallot's tetralogy at 18mths old. He is awaiting next step to correct pulmonary stenosis. Where about in Warrington do you live? If you want to contact me my email is < ... > , Danielle x
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Sent: 2005-07-17 at 20:05:37 GMT
hi my name is alex and im 12 and i have svt its a pain in the but because it always happens when im having fun im having an operation very soon wish me luck
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Sent: 2005-07-17 at 20:10:22 GMT
hi my name is alex and im 12 and i have svt its a pain in the but because it always happens when im having fun im having an operation very soon wish me luck its so annoying ive had like 50 ECG's i hate them cus the stickers hurt when they rip them off hehe i have no idea why its called an svt ???? wats it stand for o well ok bye !!!!!!!!!!!
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Kerry Funnell, Kent, England
Sent: 2005-07-20 at 09:44:42 GMT
Hi i was wondering weather there are any parents out there that have had a son or daughter go through a ross-kono op as my 2 year old son is going to have this op within the next 12 weeks.I know that this is an op that is rarely done so would love to have a chat. Thanks Kerry.
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erica ormesher, southport, united kingdom
Sent: 2005-07-30 at 18:13:21 GMT
Homepage : n?a
my daughter was born 03-03-02,with pulmonary atresia with V S D,(ventricular septal defect) she is now three and half,there have been 3 ops (most recent being last christmas,10th dec to 18th jan,it was Rastelli OP.,and many ups and downs for us as we also have three other children,would love to talk to someone else who has been through similar,as although people are sympathetic,unless theyve been thhrough it they havent got a clue how you really feel,even after three and a half years i havent accepted things and cant deal with it
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Pam Brown, Columbia SC, USA
Sent: 2005-07-30 at 19:14:32 GMT
My 6 week old daughter has Truncus Arteriosus and had open heart surgery at 2 weeks. We just got home from the hospital last week after a 5 week stay. We are looking at another surgy in about 9 monts. she will have either the Rastelli or the Glenn followed by the Fontan. I would love to talk to anyone who has gone through any of these experiences. We have no idea what to expect.
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Nick Zerwas, Minnesota, United States
Sent: 2005-08-04 at 03:59:54 GMT
Homepage : http://www.nickzerwas.com
My name is Nick Zerwas I am a 24 year old Tricuspid Atresia (CHD) survivor. When I was born in 1980 doctors told my parents I would only live to be seven years old. Nearly 25 years later I have had 10 open heart surgeries, including one of the first Fontan procedures in 1986.
I am doing very well now, I just recently married my high school sweetheart of six years. I work for a Sherriff's Office here in Minnesota, USA as a crime lab forensic evidence technician. I recently wrote an autobiography that is currently being published. My autobiography "The Gift of an Open Heart" follows my struggle from birth through my high school graduation.
I wrote my autobiography to provide hope for families coping with CHD. My hope for this book is that it can be a resource for teenagers and parents of children with CHD. Information on my book can be found at http://www.nickzerwas.com/book.html
For those of you that have an upcoming surgery my thoughts and prayers are with you. Never give up hope! Doctors have told me six times in my life that I had less than 6 months to live!
"...I really believe we are on Earth until our mission is complete. When we are done, we are done... When my time is up it's up and if it's not up yet, then a little surgery won't stop me..."
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Claire's Mom, covington, la
Sent: 2005-08-05 at 04:23:53 GMT
Please if you can connect me up wtih somebody that can help me with my childs dx. Pulmonary Vein Stenosis. Maybe find a family that is going through the same thing, I would greatly appreciate it. God Bless Mica.
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