GuestbookIf you would like to make a comment about any matter related to the Association, your own experiences with a heart child or comments about our website, you may do so in this Guestbook. Note: Latest entry is now at the bottom of the last page.
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andy pollit, lanzarote
Sent: 2005-03-27 at 10:37:55 GMT
i have a grandaughter who has severe breathing problems and am looking to buy or rent a heart monitor for use at home,does anyone know where in the UK i can get one from
Click here to contact 'andy pollit'.
Lorraine, cavite, Philippines
Sent: 2005-03-31 at 05:57:10 GMT
Homepage : www.picturetrail.com/pic_ko_to
First of all, I would like to introduce myself. Im Lorraine Sarmiento 22 year old mother from the Philippines. I'm writing to you because I would
like to know if you can help my daughter who has Atrial Septal Defect in anyway you can. I've been browsing for charities who can somehow help me
and one of the site is yours. My 3 y.o. daughter was diagnosed to have atrial
septal defect and this 30th of march we went to her pedia-cardiologist for her 2decho because she heard a 2nd heart murmur and found out that its coming from her cleft mitrial valves (congenital mitral regurgitaion). The doctor advised us to have an open heart surgery as soon as possible because the complications might affect her in someway and will be too dangerous for her. I know that you can't trust me for now but this is the only option I know to help me have my daughter live a healthier life. If
you want any documents or anything to support my plea, please email me. I'll be more than willing to send you any information and/ or laboratory tests
you will be needing. Thank you so very much I know the Lord God will help me somehow and I hope you'll be a part of saving my daughter's life. Thank
and God bless....
Click here to contact 'Lorraine'.
Hannah Taylor, Halifax, West yorkshire
Sent: 2005-05-02 at 18:49:23 GMT
My daughter Rosie is 9 months old she has tetralogy of fallot with absent pulmonary valve and Bronchia malaisia. IF anyone has child with same or similar condition and wants to get in touch.
Click here to contact 'Hannah Taylor'.
rashid ssewagudde, Kampala, Uganda
Sent: 2005-05-03 at 11:14:57 GMT
Homepage : www.abdulserubiri.faithweb.com
Iam a uganda father who had just had a son opperated and i have started a new suport gruop the fist of its kind in Uganda i pray foryour support
HEALTHY HEART PROJECT- UGANDA
Click here to contact 'rashid ssewagudde'.
Connie, Aberdeen, United Kingdom
Sent: 2005-05-07 at 21:32:57 GMT
My 2yr old son has Tetralogy of Fallot and is awaiting his big op in winter of this year if anyone is in the same situation I'd love to hear from you
Click here to contact 'Connie'.
Felicity, Prestwick, Ayrshire
Sent: 2005-05-13 at 08:00:54 GMT
My 20 month old son Connor was diagnosed with TOF at 4 months, at 6 months he had a BT shunt and we are now waiting on his full heart repair, we have been told it will be done within the next 9 months.
Would love to hear from any other mums in the same situation. Anyone waiting to go into Yorkhill?
Click here to contact 'Felicity'.
julie Rayner, Sheffield, England
Sent: 2005-06-05 at 14:31:12 GMT
My 14 month daughter Lily,otherwise apparently healthy and active, has just had her heart murmur checked out (3rd time) and they now know it is due to a mild valve thickening. Nervously awaiting follow up appointment in Leeds. Anyone been in a similar posiyion,? feel like we rae completely in dark!
Click here to contact 'julie Rayner'.
jackie, warrington, england
Sent: 2005-06-06 at 16:06:12 GMT
i would love to hear more about susie from edinburgh daughter, my son now six had transposition corrected when he was very little, drs dont want him to play football, wondered if you had stopped your daughter doing anything or if she knew herself if she had done too much ??? anyone else with any advice please feel free to contact me thanks xx
Click here to contact 'jackie'.
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