Guestbook
If you would like to make a comment about any matter related to the Association, your own experiences with a heart child or comments about our website, you may do so in this Guestbook. Note: Latest entry is now at the bottom of the last page.Page: < 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16
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Wayne, Blenheim, Australia
Sent: 2004-11-02 at 07:51:30 GMT
I would like to hear from anyone who has Dextra Cardia Situs Inversus Totalis. I know we are in short supply but I would like to hear other's stories..
Click here to contact 'Wayne'.
angela wills, Tonypandy, South Wales
Sent: 2004-11-02 at 15:16:36 GMT
I have a son aged 13 his name is Bradley, he was diagnosed at birth with Ebstein's anomaly of the tricuspid valve. He had a tricuspid valve repair in 1997, with post op complete heart block leading to a permanent pacemaker implantation in March 2000. Recently he went back into hospital with atrial tachycardia requiring cardioversion. He takes medication on a daily basis but I am finding that as he has got older he is starting to rebel against his condition, and does not wish to talk about it, He will often deliberately not take his medication if for any reason he has quarrelled with myself. I would like to know if there is anyone else experiencing this with their child. He is a lovely child and has been through so much and has always been close to me but I am finding as he has got into his teenage years he is shutting himself off from me. Please help.
Click here to contact 'angela wills'.
Rashid Ssewagudde, Kampala, Uganda
Sent: 2004-11-10 at 08:45:26 GMT
Homepage : www.abdulserubiri.faithweb.com
Abdul & The History or Story behind him.
I am three years of age i was born on 23, October 2001 in Mulago hospital Kampala Uganda I have a wonderful Dad My Father is Rashid Ssewagudde. A Lawyer by proffesional aged 38 years born on the 19, January 1966 in Uganda.
My mum is Hadijah Nabagereka, born 12, June 1978 a housewife. I was born as any other babies, I looked normal in all way by the time I was discharged from hospital i was healthy .
I started coughing as soon as we reached home my dad did every thing possible to cure me. It took Drs two years to detect that I had Tetralogy of fallot (TOF) and an over riding Aorta .
Here in Uganda being a third world country, very few people are previlaged to have such expesive operations like open heart surgery. That did not deter my dad from trying to look for help for me in any form and Trusted God to have mercy on me and my poor family and Prayers were requested all over the world .
A helping hand appeared through Pastor David F and his wife who were very much conserned and looked every where for help.
Another good samalitan is Madam Desma Wilson Ferrell of healing the children greater Philadelphia chapter who worked so hard to get all I need for open heart surgery, I cant forget Tricia Simmons of USA she has been so kind to my family , among all friends I can't miss on The young Natalie who has the same problem with her heart and has gone through surgery I pray for her to recover and gain weight as i was made to understand by her Mum though dad.
Due to my Dads efforts and freinds I have landed a chance to have my first surgery in Deborah Hospital, USA courtesy of Healing the children Greater Philadelphia chapter,a few formalities like visas and air tickets for me and my mum are the only few things not in place, God be praised.
The operation is scheduled on 17th, November 2004. I pray God will see me though this operation. For there is absolutely nothing imposible with God!
Abdul & The History or Story behind him.
I am three years of age i was born on 23, October 2001 in Mulago hospital Kampala Uganda I have a wonderful Dad My Father is Rashid Ssewagudde. A Lawyer by proffesional aged 38 years born on the 19, January 1966 in Uganda.
My mum is Hadijah Nabagereka, born 12, June 1978 a housewife. I was born as any other babies, I looked normal in all way by the time I was discharged from hospital i was healthy .
I started coughing as soon as we reached home my dad did every thing possible to cure me. It took Drs two years to detect that I had Tetralogy of fallot (TOF) and an over riding Aorta .
Here in Uganda being a third world country, very few people are previlaged to have such expesive operations like open heart surgery. That did not deter my dad from trying to look for help for me in any form and Trusted God to have mercy on me and my poor family and Prayers were requested all over the world .
A helping hand appeared through Pastor David F and his wife who were very much conserned and looked every where for help.
Another good samalitan is Madam Desma Wilson Ferrell of healing the children greater Philadelphia chapter who worked so hard to get all I need for open heart surgery, I cant forget Tricia Simmons of USA she has been so kind to my family , among all friends I can't miss on The young Natalie who has the same problem with her heart and has gone through surgery I pray for her to recover and gain weight as i was made to understand by her Mum though dad.
Due to my Dads efforts and freinds I have landed a chance to have my first surgery in Deborah Hospital, USA courtesy of Healing the children Greater Philadelphia chapter,a few formalities like visas and air tickets for me and my mum are the only few things not in place, God be praised.
The operation is scheduled on 17th, November 2004. I pray God will see me though this operation. For there is absolutely nothing imposible with God!
Click here to contact ' Rashid Ssewagudde'.
Pamela Baker, Hudson Falls, NY, USA
Sent: 2004-11-12 at 21:11:18 GMT
We were informed today that my 10 month old granddaughter has dextro cardia. We have an appointment for her to see a pediatric cardiologist on December 1st. . Any imformation about this condition would be greatly appreciated. This child also had surgery for pyloric stenosis at one month old,any info about what lies ahead for us would be greatly appreciated. Thank You....
Click here to contact 'Pamela Baker'.
sonia reis, porto, portugal
Sent: 2004-11-15 at 05:57:27 GMT
i have sindroma de eisenmenger and i would like have some answers for my questions abaut others teenagers with my health problem, i am 30 years old.i am waitting the answer.
sorry if my english is not good.
Click here to contact 'sonia reis'.
Gaynor, Huddersfield, England
Sent: 2004-11-28 at 15:32:54 GMT
I had my co-arctation repair in July 1985 at Killingbeck hospital, Leeds when I was 11 and have had no related problems ever since. I recently had to undergo an MRI scan due to the length of time since my op, but this was also fine.
I am keen to hear from anyone else who has a history of this condition in their family, as my Uncle died of it in the early 1960's and my Dad had a repair in the early 1970's. Has anyone with similar genetic history had a baby without the disease?
Click here to contact 'Gaynor'.
Lisa Ingram, Tongwynlais, Cardiff, S. Wales
Sent: 2004-12-09 at 23:57:46 GMT
Hi
I have a three year old daughter called Seren, she was diagnosed with re-entry S.V.T at 3 weeks old, she's on regular medication (with regular attacks!) and will have to wait for surgery until she reaches 12-14 yrs old due to her weight (or lack of it!). I would love to hear from other parents with children suffering with the same condition.
Click here to contact 'Lisa Ingram'.
Stacie, sitka, usa
Sent: 2004-12-18 at 07:14:10 GMT
my daughter is 14 yrs old and her Dr has found a heart murmur we dont know yet if it is functional or not what shouls we expect??????
Click here to contact 'Stacie'.
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