Guestbook
If you would like to make a comment about any matter related to the Association, your own experiences with a heart child or comments about our website, you may do so in this Guestbook. Note: Latest entry is now at the bottom of the last page.Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16
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Melinda Brown, Biddeford, ME, USA
Sent: 2001-01-07 at 19:40 GMT
Hello,
I am a 22year old female that was born with L-Transposition of the Great Arteries, dextrocardia, Pulmonary Stenosis, and a VSD. As a infant I had a Blalock shunt done. The Shunt proceedure work well until I reached the age tewlve. At tewlve I had open heart surgery, to repair the VSD. The surgery was done at Bosoton Children's Hospital and went very well. I found a love for congental heart disorders while at children's. I decided to to go to college to do echos and other related tests. I will graduate in May from a cardiovascular program, and I am very happy. I work now as an EKG tech, and will be starting clinicals for school at Children's hospital soon.
I found this website looking for information for a report that I am working on. I think that this a wonderful website and would really like to be a part of your association.
Please feel free to contact me at < ... > for any reason.
Melinda Brown
Click here to contact 'Melinda Brown'.
Sally Farrington, Ambleside, Cumbria, UK
Sent: 2001-02-11 at 15:36 GMT
My little girl Maisie has a complete AVSD and recently diagnosed small left heart. She is being fed Infatrini by NG tube and is on the short list for a pulmonary banding. Can you offer any advice re feeding problems, or maybe you can help me make contact with a family with similar problems.
Click here to contact 'Sally Farrington'.
Barbara A .Astley-Maines, Newton-le-Willows Merseyside, England
Sent: 2001-04-09 at 20:40 GMT
Hi we are sorry that we have not attended any of your functions but since we joined we have not received any mailing from the association,we became members two years ago when my daughter was diagnosed as having complex transposition of the great arteries , we found out about the 1999 christmas party through a notice on K2 since then we have heard nothing . After talking with another member who had recived a letter concerning the 2000 christmas party in which it was said that due to lack of support it may be the last chritmas party at Alder Hey I feel this may be one of the reasons {that members are not being informed }.
We regularly attend O1 clinic but never see any information about the association and it was only by chance that we found your web site, one of the main problems for us is that we live a fair distance from the hospital and cannot attend the coffee evenings as we cannot get a babysitter willing to look after our daughter as thay feel it is to great a responsability .
We would be greatfull if we could be put in contact with any other parents with children with the same condition {pre or post op}the procedure my daughter requires is a rasttelli .
Thank you for the work your association is doing for the children and parents
B A Astley-Maines
Click here to contact 'Barbara A .Astley-Maines'.
Cher Kennedy, newmarket, uk
Sent: 2001-04-10 at 22:36 GMT
i have a 9 year old boy who has DIRV. We would like some information on the condition that his friends can understand.
Thank you very much.
Click here to contact 'Cher Kennedy'.
Louise Soar, Pontefract West Yorkshire
Sent: 2001-05-14 at 21:20 GMT
Really informative web site - will use your information for fundraising ideas.
Sorry, 'Louise Soar' did not leave an email address.
Marion Gourlay, Dalbeattie, Scotland
Sent: 2001-06-15 at 20:40 GMT
Enjoyed visiting website. I knew it was there but had not bothered to have a look. All the best to everybody.Yours Marion.
Click here to contact 'Marion Gourlay'.
cathrine claassen, cape town, south africa
Sent: 2001-06-18 at 15:19 GMT
i would appreciate it if you could send me information about problems of heart valves that is not functioning properly anymore. on the 18 june2001, me and my family heard the shocking news that our 12 y.o nephew,s heart valves is not well anymore. we would appreciate it if you could assist in explaing about this disease, and some comforting measures we can give him, because even though he does not say anything, we know that he is scared and does not understand what is happening with him.thank you.
Click here to contact 'cathrine claassen'.
Sean Taylor, Johannesburg, South Africa
Sent: 2001-07-10 at 09:25 GMT
Very informative site. I especially liked the explaination of the terms that the doctors use. My daughter has had a Coarctation of the Aorta repaired, a VSD and a Bicuspid Aortic valve.
Click here to contact 'Sean Taylor'.
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