Guestbook
If you would like to make a comment about any matter related to the Association, your own experiences with a heart child or comments about our website, you may do so in this Guestbook. Note: Latest entry is now at the bottom of the last page.Page: < 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16
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kathryn mc mahon, Blackburn, lancs
Sent: 2012-07-24 at 14:54:00 GMT
We have just found out that are 2yr old little girl lexi-louise has (long QT syndrome)I would be very grateful if anyone with the same condition would contact me
in regards to treatment & lifestyle we has a family are still in shock with her having the condition. She a little chatter box & run's us all wild she starting nursery in sep & I am worried that's she mite not settle into nursery very well I have to other children both boys. Hope to hear from you soon kath x
Click here to contact 'kathryn mc mahon'.
Sarah Crawford, Brighouse, UK
Sent: 2012-08-29 at 08:14:56 GMT
I am 23 weeks pregnant and our unborn baby has been diagnosed with pulmonary artresia. Does anyone else have a child with this that was diagnosed through pregnancy that we can talk to?
Click here to contact 'Sarah Crawford'.
Jo mccaffery, Warrington , Cheshire
Sent: 2012-12-26 at 16:37:09 GMT
My 5 year old son has sub aeortic stenosis and this has started to leak. He is on the waiting list for open heart surgery at alder hey. Any information on what the surgery /recovery times/what to expect woulfd be appreciated
Click here to contact 'Jo mccaffery'.
Liz Kelly, Bolton, England
Sent: 2013-01-02 at 11:49:51 GMT
My 4yr son was born with asd and is going in to hospital tomorrow to have it closed I have been fine but now I'm feeling nervous and anxious did anyone else feel the same.
Click here to contact 'Liz Kelly'.
Anna, Liverpool, UK
Sent: 2013-01-03 at 12:31:00 GMT
My little girl was born at 42+1 weeks and weighed 9lbs, no problems were diagnosed at birth, from birth onwards she sweated profusely from her head whilst sleeping and stopped breathing and went blue when she cried yet all midwives/GP's/Health Visitors insisted she was fine. I eventually insisted that my GP gave her a through check one last time and he found a heart murmur, sent her to a cardiologist who then found a small Patent Ductus Arteriosus. I'm still fighting though as the cardiologist says she is asymptomatic. I have a second opionion cardiology appointment this month, she's now almost 28 months old but is in clothes for 12-18 month olds and hasn't really put on any more than 2-3lbs in about 9-10 months....Any thoughts?
Click here to contact 'Anna'.
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