Parent2Parent Support
CHD UK email list
This is a UK-based Email list at YahooGroups. There are over 60 members, providing support, information and advice to each other.
Contact
Dan English
Web Address
http://groups.yahoo.com/group/CHD-UK/
Email Address
Dan.English@Blueyonder.co.uk
Eurohearts
A Europe wide listserve for those who have congenital heart defects.
Contact
Paul Willgoss
Web Address
http://groups.yahoo.com/group/eurohearts/
Email Address
paul.willgoss@btinternet.com
Xander and Chloe
http://mysite.wanadoo-members.co.uk/Xander_and_Chloe
This site follows the highs and lows of my 2 wonderful children, some of it will be distressing, but if you feel you can cope with that, then do look around.
A boy called Alex
http://www.aboycalledalex.org.uk
The purpose of this website is twofold, firstly to provide an update on Alex's progress for friends and family who want to keep in touch with his development following his traumatic and somewhat difficult start to life. The second is to provide sources of information for parents who find that their little child has more challenges than they had originally hoped for.
Aaron's Gift of Life
http://mysite.wanadoo-members.co.uk/Aarons_gift_of_life
This site has been created to tell an inspirational story of one little boy's struggle for life.
Lisa Bettendorf, Miracle from God
http://www3.caringbridge.org/nc/lisa
Lisa was born March 3, 2003 and it wasn't until she was 14 days old that she was diagnosed with a rare congenital heart defect known as ALCAPA.
Rooney-Lee Kerridge
http://www.freewebs.com/rooney123
This is the website of Rooney-Lee Kerridge and run by his family. Rooney - Lee Kerridge was born at the Queen Elizabeth Hospital, Kings Lynn and was soon diagnosed with Coarctation of the Aorta.
If any of the above links are out of date, or you know of any other sites which are relevant and could be included, please send an email to information@heartchild.info.
