Welcome

Formed in the UK in 1973, the Children's Heart Association (formerly The Association for Children with Heart Disorders) is a support group run by families and friends of cardiac children for families with, or who have had, children with heart disorders. The Children's Heart Association is a charity based in the North West of England. We are members of the Children's Heart Federation (www.childrens-heart-fed.org.uk) and we have a sister charity, the Scottish Association for Children with Heart Disorders (www.youngheart.info), which has branches throughout Scotland. You may also find the Cardiac Youth Forum Hearts4Teens (www.hearts4teens.org.uk) website useful, it answers those questions that young people with heart problems might have.

We hope you find our website useful. We have tried to include all sorts of information relating to children with heart defects. You will find literature to download, stories, news items, articles on past events and links to other organisations across the world.

Please use the menu to navigate the site. See how we try to help families with heart children in the section ''How do we help you?''.

Notices

My Heart vs the Real World

In association with Scion Publishing for every copy of 'My Heart vs the Real World' by Max S. Gerber, a donation of £1.50 will be made to our Association. My Heart vs. the Real World is a photo documentary volume that explores the lives of children with congenital heart disease (CHD) through striking black-and-white photographs and interviews with subjects and their families.

For more details about the book and to order your copy please see www.heartchild.info/myheart which will direct you to our special page on Scion Publishing's website. Note: by completing an order through the above link, the dontaion will automatically be made.

Online Shop

Our online shop is now even easier to use with direct links to some popular retailers. See Online Shop Links for further details.

Latest Association News

( January 2008 ) Donation from Eli Lilly and staff

The Children's Heart Association would like to thank all those at the Eli Lilly Speke site for their support of our charity. Their donation of £1000 is greatly appreciated and will go a long way to allow us to fulfil our charity's aims of he ...

( November 2007 ) Not got the blues

Thanks to John and Lorraine Welsh who have supported us for the past few years. They regularly put on bands who plays Blues from here and the U.S.A at the Liverpool Marina and they hold a raffle and donate the raffle money to the Association.. Thi ...

( November 2007 ) Justgiving

It's been a busy year for all our Justgiving supporters and thank you to them all. Stephen McCay riased over £1065, Denise Richie raised over £520, Mark Jones raised over £310, Kathryn Orgill raised over £225. Mark Reynold ...

Read more Association News >>

Forthcoming Events

( 08-Aug-2008 ) Fashion Show

Excellent quality second hand and brand new stock all available to purchase on the evening. (Cash or cheque only). All monies raised go to the Children's Heart Association. Tickets £3 in admission and light finger buffet. Please contact Val Frew ... [More...]

( 13-Sep-2008 ) Blackpool Lights

The Association is planning a trip to see the Blackpool lights. Please contact Val Frew on 0151 733 1396 for more information and to book your place. [More...]

( 12-Oct-2008 ) Swimming

The Association is going swimming. Please contact Val Frew on 0151 733 1396 for more information and to book your place. [More...]

See more from Forthcoming Events >>

Latest Guestbook Entries

( 20-Feb-2008 ) From Brooke & Charles

When our son Jaxon was 9 days old we found out he had physiologically corrected transposition of the great arteries, large inflow VSD and cleft mitral valve. On August 2007, Jaxon had open heart surgery to close his VSD, the cleft in his mitral valve ...

( 21-Oct-2007 ) From donna jones

my daughter has aortic valve stenosis.She was 9 weeks old when she had a balloon valvuloplasty and has done well. She is now 10 and unfortunately her valve is moderately stenosed and is also leaking badly so she is on the waiting list for the ross pr ...

( 20-Oct-2007 ) From sara young

I have a four year old son who was diagnosed with dilated cardiomyopathy at birth. He has responded well to medication and his heart now appears "normal" at scans. We administer enalapril maleate twice daily as we always have. We have however noti ...

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Latest updates to the site

( 10-Mar-2008 ) Hearts4Teens website

Added link to the Cardiac Youth Forum's Hearts4Teens website.

( 10-Mar-2008 ) Scottish Association

Updated the Scottish Association's website address. It's now www.youngheart.info

( 15-Jan-2008 ) Thank you

Added thank you to Eli Lilly and staff, Speke

( 01-Nov-2007 ) Event updates

Updated information for Science Museum trip and for the Christmas Pantomime. Added provisional dates for Ice Skating.

See more from Website Updates >>